Live your best, and act your best, and think your best each day, for there may be no tomorrows.

OUR MIRACLE BOY 

Itay, who is 3 years old, was diagnosed with CHARGE syndrome at birth. He experienced deafness in both ears, feeding difficulties, vocal fold paralysis, gross and fine motor deficits, as well as a developmental disorder affecting his speech and language. CHARGE syndrome is a highly intricate genetic disorder characterized by life-threatening birth defects. Itay primarily communicates non-verbally and relies on a tracheostomy for breathing. However, he has recently been introduced to hearing devices, which have provided positive advancements in his ability to communicate.

Throughout his early years, Itay has undergone numerous surgeries and medical treatments. He regularly receives speech, occupational, and physical therapy to assist in his development. Despite these challenges, Itay has surpassed all expectations and is truly a miracle baby! With the help of comprehensive therapies, he has made significant progress. He is now starting to produce sounds, engage in play with toys, and even crawl. Itay holds a special place in their family's heart, and every day is devoted to supporting him in reaching his full potential. While the family often feels exhausted and frustrated due to the hurdles they face, Itay's resilience and progress serve as a guiding light, keeping them motivated. They are determined to do whatever it takes to ensure their son receives the crucial support he needs.

Let's Get Married Orlando has made a remarkable gesture by pledging to donate all proceeds to assist Itay in accessing the necessary care and treatment. These contributions will go towards vision therapy, hippo-therapy, and therapeutic equipment aimed at enhancing Itay's well-being. Managing insurance companies and coordinating medical appointments can be overwhelming at times. There are moments when the family questions whether they can continue the fight. However, whenever they look at their miracle baby, their resolve is strengthened, and they are reminded that they will never give up. When Itay was diagnosed with CHARGE syndrome, doctors explained the multiple organ systems affected by this rare disease. They also shared the devastating possibility that Itay might remain in a vegetative state due to a lack of oxygen to his brain. As parents, they experienced immense heartache upon learning about the potential outcomes and challenges associated with their first-born child. In that moment, they made a firm decision to fight back, armed with unwavering faith, hope, and dedication.

By choosing Let's Get Married Orlando to officiate their wedding, couples embark on a beautiful journey together while continuing to support Itay, their miracle boy. The couple's generous contributions will help Itay receive the ongoing care and treatment he needs. Furthermore, these contributions will assist in obtaining essential therapeutic equipment that plays a critical role in Itay's development. The family deeply appreciates the support they receive, as it reinforces their determination to never give up. Together, they can make a significant impact on Itay's life, enabling him to overcome the challenges he faces and thrive.